Pat’s ALS Story

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  • ALS and koi

    We have Koi fish again!! So much has been happening in the world of ALS at our house. It’s mind boggling sometimes. I now have the Hoyer lift to help me get off the floor if necessary. Although we haven’t had to use it, which is wonderful. I have a new primary care doctor in…

  • PICTURE A SLOTH

    A couple weeks ago I recognized that when I’m transferring from wheelchair to the couch, or wheelchair to bed that I tend to move so slowly that I resemble a sloth!  It gets pretty funny sometimes. Things are constantly changing here. Lately I drop my finger foods, I can no longer feed myself with a…

  • ALL THOSE APPOINTMENTS

    What a lot of appointments! Let me begin by saying I absolutely despise auto correct. If you find errors that I have missed, please forgive me. I have to dictate everything now. So this past week I went to Pensacola to complete several appointments. Each one seemed to be very brief and devoted to one…

  • Happy Turkey day

    Well Thanksgiving was quite an event! Mike took care of everything and he entertained nine people at our house. The food was fabulous, the company was comfortable, we had good conversations, we drank some good wine and we ate until we were stuffed. Mike is a southern boy so we have to have turnip greens,…

  • I don’t have a crystal ball!

    So, I was talking to a friend, Ruthie the other day and she asked me a question I’ve heard in several versions. What happens with ALS? Man, I wish I knew! ALS is a neuro-muscular disorder in which the brain no longer has a good signal with the extremities. Some people with ALS start to…

  • Hello World!

    ALS aka Lou Gehrig’s Disease: WTF? Hello everyone. If you’re reading this then you have shown interest in following along with the progress of my condition. As you know I’ve been diagnosed with ALS and I’m learning about it as quickly as it’s happening to me. We’ll actually, that’s not so true. If I’m being…